Behind starburst eyes

Some things you just can’t Google

There are times when I get caught up in ensuring that Mr.C is “on-track” or “at grade level” with his peers. I get fixated from time to time on the lists lit up upon my computer screen of all the things our local school board says he should know at this time. Lists of facts and figures, books they have chosen, grammatical rules and scientific theories. But no where in their reams of pages does it speak of morals, attitude, creative thinking, leadership skills, ingenuity or honour.

When I get caught up on what he does or does not know academically, I remind myself of the following:

I am not here to create a robot that can spout facts or scientific theories verbatim, but lacks the ingenuity to put them to productive use when he needs or even wants to do so.

I am not here to force him to memorize plots and dialogues, but lacks the critical thinking skills to grasp the significance of some of the literary works of art we currently have access to as a society in general.

I am not here to ensure he conforms to someone else’s standards, but lacks the honour and strength of character to stand up for what is right when what is wrong is being accepted as the status quo.

What I AM here to do is to teach him to (eventually) be a good man. To be the type of person others will be proud to call their friend, their ally. To be someone with enough courage to stand up for what is right, even when he’s forced to stand alone to do so. To be a man of honour, of integrity, to be a man of  ingenious leadership abilities, even when he’s only leading himself along his own path.

Don’t get me wrong, I DO teach him academics, but if it takes him a bit longer than some piece of paper says to learn about the periodic table of elements or the correct placements of commas I’m okay with that. Why, because he’s learning SO much more right now, he’s learning how to become the man he will be for the rest of his life.

Plus if he forgets the standard conversion rate of ATP to ADP he can Google it, but when it comes to things like strength of character well there are some things you just can’t Google 😉

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Working with his neurostructure for academic success

I have homeschooled Mr. C since removing him from pre-school after his negative experiences there. I have always tried to modify his academics towards his personal interests, such as learning to count using construction machines and fire trucks, and reading was done with books on cars, and transformers. I taught him about charts, compiling and comparing data with Lego Bionicle pieces.

However I will admit I never took his specific unique neurostructure into account when creating his homeschooling plan. What I mean by this is that I would have him do a certain amount of work for each subject each day, because I never thought of altering that. Slowly as more subjects have been added, I’ve watched as he’s tried harder and harder to just “get through” each of them. We’ve spoken about it, and it always comes backs to feeling overwhelmed by the number of subjects he’s to learn. He says that when he’s struggling to learn one thing, he worries about the time it’ll take because of still needing to complete other subjects, and that when he’s enjoying a lesson he can’t just keep going and learning more about it.

Now I know one option would be to lower the amount of subjects he’s to learn, but I know he’s capable and I feel that each of those subjects are important. So while watching Mr.N sleep the other night and wondering what he was thinking of, I started to think about how he and his brother focus on specific subjects for extended periods of time. Then it hit me, what about making Mr. C’s homeschooling more in tune with how his brain naturally works. If I lower the amount of subjects per day to just two, but increase the amount of time we spend on each of them he’d be able to get really in depth about each subject and truly master each concept and lesson we learned. It would work with his natural tendency to dive right into a subject of interest as deep as he wanted, so that he really absorbed everything he could about it.

I spoke with him, and he loves the idea of changing our homeschooling schedule to this new concept. I think that by working with his natural tendency to really immerse himself in one subject at a time for long periods of time instead of against it by having him do a little of several subjects each day that he’ll not only enjoy the academic portions of his day more, but he’ll also retain and comprehend more of them. I feel this different method will actually allow for him to learn even more than he was with our previous method, and that is the core of what homeschooling is about to me: Tailoring it to ensure he learns as much as he can in ways that work with him.

 

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To My Children

From the moment I knew each of you was on your way I have spent every moment of my days and nights devoted to you.

I anxiously awaited your arrivals,

I have pondered for countless hours a million different aspects of your upbringing, from the largest facet of child rearing to the most minute of choices,

I have made countless phone calls for counsel on the best way to handle various situations I found myself immersed in due to being your mom, searching for the best solutions for each of you,

and I promise you that I shall continue each and every day to be the best mother I can to each of you…

I’ll go hungry so that you may eat,

I’ll go cold so that you can be warm,

I’ll go without sleep so that you have time to dream,

I will fight for you so that you are safe,

I will stand in the shadows so you learn how to shine,

I will find time when none exists to do whatever needs to be done to see your faces light up with joy,

I’ll endure whatever hardships are necessary so that you always have what you need no matter the cost to me,

At the end of it all, I will let you go with a smile upon my face when it’s your turn to fly; Knowing I did every single thing that I could to help each of you reach your fullest potential as the amazing individuals that you are…

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It’s not freedom if they can’t chose for themselves

I’ve read many things online lately that speak of the acceptance debate about Autism right now. Numerous of those articles say things like “It’s not true acceptance of the person if you try to teach them social skills, because that’s just trying to change them, not accept them the way they are” I disagree with that idea.

 

For me personally, I feel that teaching all the social skills as they are now called to my Autistic sons is akin to teaching spanish to my children who were born speaking english. Why would a parent do that? What could be gained from a child learning a second language? You guessed it, they could communicate effectively to gain what they needed from a vast array of situations with more people than if they only spoke one language. Does teaching them spanish imply that their first language and native tongue will always be less than the second one they were taught? NO it doesn’t. Does teaching them spanish mean that I will not listen to them or converse with them if they speak in english instead? NO it doesn’t. It means that should they decide at any given time that speaking in spanish would be more effective in a specific situation for them to obtain what they want or need that they can. Not that they have too, just that they have the option to express themselves in both languages, and that they can choose either option at their own discretion.

 

I think the difference between what I believe and the persons stating it’s not acceptance if you teach “NT” social skills to your autistic child is that I’m NOT saying they HAVE to use what I’ve taught them, I also plan on teaching them how to bake a cake from scratch, doesn’t mean once they’ve learnt how to do so that from morning till night they have to bake cakes non-stop. It just means if they want too they can, and I’m ALL about them having the freedom to choose, but it’s not freedom to choose if they aren’t allowed to explore all their options and then choose which one/s are best for them specifically. I also won’t teach them that they are wrong or less for their natural state or “native tongue” to continue with my original metaphor, just a simple statement of fact that it might be useful to also know this language in addition to your own.

When I teach a “social skill” I explain in detail what the general perception is, what my perception is, and encourage their own thoughts and feelings to be discussed about it. Such as when my eldest wanted to wear his transformer’s costume to the mall in May. I asked why first and he said because it’s fun to pretend he’s Optimus Prime and he loves how soft the costume is his Aunt and Uncle got him. I told him I agreed it is fun to pretend, and it is a very soft costume. I also told him it was perfectly fine with me. I did explain that some people might think it was strange that he was wearing a costume when it wasn’t close to Halloween and they might say something unkind or mean to him because of it. But that I knew how much fun it was to dress up and that as long as he understood that might happen I was proud to hold his hand in any mall while he wore any outfit he could find. He decided he’d wear it, and when there was a rude comment about it he replied “I’m wearing it so only my thoughts on my costume matter” and off we continued in the mall.

SO I did not force “NT” social skills, nor suggest that I felt he was wrong or bad for his choice. I reinforced my unconditional love and acceptance for him exactly as he is, but also told him the truth of how it might be perceived to allow him the choice of “did other’s perceptions of him matter to him in these circumstances” clearly that moment showed a definitive no, but at other times it might be a yes and that’s okay. Because it’s still allowing his feelings, thoughts and wants to ultimately dictate his actions, which is exactly as I think it should be.

But one of the things that I’ve read and seen in my own sons time and time again is that the inferred portion of any interaction is not always understood or picked up on. So it’s my job as their first teacher to teach them all of the hidden things they don’t automatically pick up on and then let them decide how they wish to proceed. That to me is the true definition of parenting, to help them understand everything and decide what is best for them personally from there.

I parent this way because I started with one goal in mind for all of my parenting choices “to ensure my children’s happiness” Then I simply work backwards from that goal by asking “What will make them happy?” or “Will ______ make them happy?” Sometimes I know, and sometimes I have to either ask them or watch and see. I then base my choices from that, because it’s not about what makes me happy, it’s about them. They are first, as they should be.

For example my youngest son has no interest in other children his own age, while I know that some people feel I should “encourage” read force him to interact with other children to make him more social and therefore more socially acceptable I don’t. I bring him to places with our family because he is an integral part of our family, but if his bliss is to spin the wheels of his toy cars and not play with other children his age that are around him I’m fine with that. Why, because he’s happy. And all I want is his happiness. I truly believe that both of their happiness, heck anyone’s is based on being able to have their wants and needs met on a consistent basis. So yes I’ll continue to speak in english with them, while I also teach them spanish so they can decide which is right for them to be heard clearly and their needs and wants to be met in the manners they wish for them to be.

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Bribing them to read with cookies ;-)

Last week C and I spoke of how N wasn’t welcomed at C’s first dance competition (that can be found here) C was so angry that his brother wasn’t accepted, and that by extension he too was not accepted for who he is and how his neuropathways work. So I had two choices, I could either validate his emotions or not. Of course I chose to do so because they ARE his emotions. No one should ever tell someone they can’t feel the way they do. Then what could have been the really tricky part came, how to help him deal with it in a positive manner.

We spoke about awareness, and acceptance. We spoke of how the two are not mutually inclusive of each other. We spoke of how when people don’t understand Autism that their perceptions are skewed in a negitive manner towards things like meltdowns.
That not everyone understands the difference between a meltdown that occurs due to the brain dealing with too much sensory information it can’t process (even in “fun” or “enjoyable” situations) and a tantrum that is a “want” based behaviour choice that occurs simply to produce a desired result from someone.

So we did what I often do when I’m bothered, we baked. Then we baked some more, and we continued to talk and bake for most of the evening. In total we made just over 200 cookies. But these were not ordinary cookies, oh no. These cookies were “secret agenda” cookies. Because they were green and purple puzzle peice shaped sugar cookies and were going to be given out with a business card that C and I designed about Autism.  Here is about half of them:

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On the front of the card it said “Life with Autism can still be sweet!”  and below that the one thing C says is most important to know about being Autistc “My brain works a bit differently, but my heart doesn’t. I still feel everything else that other people do, and I just want to be accepted as me, not as what you think a label makes me”  On the back I added a list of ingredients for the cookies and how to find their way here should they wish to learn more about what Autism means for us specifically.

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We then discussed who/where we were going to give out our plethora of cookies, and C said he’d like to give them out to the kids at his homeschool group, because “Me and N go there, so I want them to understand Autism doesn’t make me or N bad, just a bit different, but different can be good too.”

Well the cookie giving went very well from my point of view. There was one moment that one of the other homeschooling moms came up to me, told me how much she liked what we’d done, and thanked us for informing her and everyone there about Autism. I was floored, it was such a lovely reaction, and I treasure her support of our endevour greatly! The staff at the YMCA where we go for homeschool group were great about it as well, smiling, munching cookies and reading the cards attached. Many of them commenting to C how great it was that he had done this. Ahh yes another reason I adore the YMCA we go too, as if I needed more reasons with how fantastic every person that works there is! (Seriously, I have no idea how they managed to get that many awesome people to work in one building, but I may never move towns just so we can continue to go there specifically for so many of our fitness/social programs!)

C was so happy with how well it went that I have agreed to help him make another 200 cookies to give away to somewhere else. No clue where that is yet, as I’m letting him pick where he feels we should go with them. 🙂

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N’s Book of Colors

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My youngest son is mad for any and all types of vehicles, so I made him his own book of colors with each color being showin with a different type of vehicle. I LOVE fabric books (often called soft books or felt books, as felt is often what they’re made out of) Mine however was not made with felt as you can see, I used satin for the coveres, and denim for all of the pages.  I also used quilt batting within each page to make it keep it’s shape and be fluffy for him. He loves to flip through the pages and when he’s done he closes it up , lays his head on it and sighs contentedly, it’s beyond amazing to watch, and certainly makes the numerous hours of work well worth it! (I had no patterns or previous experience making one of these, so I figured it out as I went which we all know means it takes twice as long lol)

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My Lambert ;-)

My eldest son is 8 years old. His favorite toys are Bionacles, and he loves chocolate chip cookies. He’s got an engaging smile and tries to make friends with every kid he sees. He’s a fantastic big brother and runs as fast as he can to me anytime his baby brother or sister is crying, so that I can fix whatever is making them cry. He likes to ride his bike, dance, and wants to become a paramedic so that he can help everyone that’s hurt.
He’s also Autistic. But being Autistic does NOT define who he is, for it is only one part of him. Unfortunately it does make it difficult for him to understand social cues such as jokes, or body language. Nor does he understand why some children are cruel with him, and countless nights have been spent cuddling with him as he cries. Just because he’s Autistic does not mean he doesn’t have feelings, and those feelings are deeply hurt when other people (adults and children alike) are not accepting or kind.

Adults tend to be the harshest with him. They have no patience and judge immediately both him and I. He’s spoilt and I’m not a good mother are the comments I get when he’s having a meltdown in public. While rare now, they do occasionally still happen.

A person with Epilepsy’s brain sends too many signals and a seizure results. A person with Autism’s brain cannot always cope with all of the information it receives from the 5 senses and a meltdown results. I cannot help that his brain gets overloaded at times, all I can do is help him to learn how to cope with so much sensory information being processed by his brain, and that takes time, a great deal of it to learn. 

For a long time he couldn’t handle loud noises or large crowds and while we would work on that regularly it took years before he could handle them without a meltdown. And for years I would measure my days by the minutes he was okay between meltdowns. On those days I would cry myself to sleep, hurting so much for this beautiful boy who was so lost within himself that he couldn’t explain what was wrong.

I took him to doctors and my worries were brushed off for almost 5 years I only received patronizing answers about him just being willful, spoilt and that his behaviour was a product of my own poor parenting.

A month before his 6th birthday a doctor finally listened and gave us the official diagnosis. Has it made a great deal of difference? In some ways yes it has. In others no it hasn’t.

In the ways of funding for more activities, programs and behavioral therapy for him, yes it has helped a great deal.

In the way of changing people’s opinions about him, some yes but most often (adults especially) are extremely judgmental and don’t always listen to an explanation after giving their harsh unasked for criticism.

Do I look at my son and wish he was “better” NO! NEVER! For to wish he was “better” is to wish he wasn’t the person he is. He loves more fiercely than any child I know, he’s sweet and thoughtful. He’s insightful about so many things, and overall perfect exactly as he is. It is because of the fact that I truly do see him as fantastic just the way he is that when he chooses to do something that is not considered “socially acceptable” or “the social norm” I don’t tell him not to. I simply let him know how it could be percieved by the general population and reasure him that I love and support him no matter his choices.

MY wish is that the rest of the world could see the shining beauty of his spirit and be in awe of it even a fraction of the amount I am.

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