Behind starburst eyes

Jul 7

There’s Always A Reason

by starbursteyes

During a pandemic isn’t the most obvious time to decide one is going to start working on a trailer and planning a trip across the Americas.

While yes a part of the reason is definitely because we couldn’t go on our grand adventure across Europe, another part was the lump I found on my sternum. I needed something to focus on while I waited for results.

While many people equate Autism with a certain amount of social oblivion, where my boys are concerned momma being upset sets off alarm bells real quick! Couple that with this pandemic already having them more anxious and the inability for me to go off from them for awhile while I process and you’ve got the potential for a whole lot of additional stress and meltdowns on their part (totally warranted mind you!)

So instead I focused on the trailer and creating a sanctuary for the kids and I to have. For a place to make memories for years to come as we adventure together, because the alternative wasn’t something I could afford to focus on in such close quarters with them.

With all the additional medical precautions in place for Covid, getting a diagnosis wasn’t as quick as I would like. It took over a week to be able to physically see my doctor, another 2 weeks for the ultrasound, and then a week and a half for inconclusive results. My actual sternum is inflamed and swollen, so I was prescribed an anti-inflammatory for rheumatoid arthritis to see if it helped to decrease the swelling and then an appt with radiology 3 months from now to look at it again. 😦

The idea that I should just sit around and wait 3 more months to see what exactly it is because most medical procedures that aren’t for Covid or for immediately saving one’s life is so disheartening and makes me wonder how many people aren’t getting timely treatment because our government cut funding for hospitals too much for too long and so they can’t handle both right now.

The bright side is that the pain is less with the medication and I think the lump is smaller so fingers crossed it actually is shrinking, and isn’t potentially life-threatening.

Autism; second verse same as the first Lambert: Proud to be a lion amonst sheep ;-) mom life Mommyhood: Fake it till you make it

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Jun 14

Dust bunnies versus sticky fingers

by starbursteyes

“Sometimes I can hear my bones straining under the weight of all the lives I’m not living.” by Jonathan Safran Foer

The above quote was found unexpectedly while I was looking at a sweet story about a dad that was going the extra mile to ensure his son had a wonderful Halloween. There right beside the heartwarming story was that quote, separate from the story.

I read it, and I felt like I had been punched in my solar plexus, it resonated SO deeply within me. I am often bothered by all that I haven’t accomplished, by all that I have not yet done. I try every day, but there’s never enough time, and there’s always something that needs doing that I hadn’t expected. I’m in my 30’s and I feel like all of those 3 decades have passed in a blur. Each year fluttering past in wisps of color and opportunity too fleeting to catch or hold on to. I try to make every day count, but I find that the mundane things often get in the way, like cleaning. It does not seem to matter what I try it always takes me ages to get the house cleaned every single day. No matter how spotless it is one day the next it’s a mess again and again I’m forced to choose between cleaning or adventure. I know I have to be the responsible adult and clean, but I want to just experience each short moment I have with my kids, I want to play with abandon with them, and laugh with joy at their discoveries, I want to go on “treasure hunts” and nature walks, and trips to the library and read under a tree from books about anything and everything to them. I want to be able to be present in the moment with them and not always “in a minute” “after I’m done the dishes we’ll ______” etc. A great deal of the time I do say “piss on it” to the housework and the time that gives me to just experience little hands fluttering across my triceps as I walk for 2 hours with N in the hiker as I walk to get him a donut and back home is priceless. Just sitting here, I can still feel the warm sun on my face, his icing covered fingers lightly touching my triceps as he yells his excitement at an orange jeep that drives past us. I treasure those moments more than I can say, they ARE what make me “me” each of those memories.

So among other things that I have to do cleaning is for sure one of the most time-consuming, so any tips dear readers? Please keep in mind I have a house with 3 adults (my mother is NOT able to help due to her health, and I’m just happy to have her company) 3-5 children, 2 of which are on the spectrum, of those two one that needs constant attention and assistance, and the other one is homeschooled by me and therefore needs time every day for that. As well as one that is not yet walking, but does love crawling everywhere she can.

Autism; second verse same as the first Lambert: Proud to be a lion amonst sheep ;-) Mommyhood: Fake it till you make it Pixie Girl: Eyes full of glitter and sunshine

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