Behind starburst eyes

Corona’s Effect on Mental Health

It’s been months since Covid-19 became a worldwide epidemic, and while I am truly, deeply thankful that my family has not experienced this virus directly, sadly it still has had an impact on my children through their mental health.

He used to be gregarious, he used to be fearless, he used to be happy and confident…Used to be…

It makes my heart ache to see the changes in him, to see how scared he is to even leave the house because as he puts it “It’s invisible, I can’t see it, I can’t fight it” He used to be thrilled to pop over to the store for me, and he’d always ask if he could pick up something for dessert for everyone in addition to the bread or milk I was usually asking for. Now, his first response is “Or I could not go” with a pleading face as he says it. He used to love going for runs, now he says “there’s too many people”. He would rather forgo takeout or new toys if he has to go outside for them.

So instead I don’t ask him to go for me, but I do ask him to go with me. I’m willing to walk with him, because I’m determined to make him go out (while of course allowing precautions such as a mask and hand sanitizer) because he can’t stay locked inside for the next however long. It’s not healthy for him.

I know this might be a long road for him, but I remember when he was 2 and would have uncontrollable meltdowns when we’d walk different routes home from Airzone, he’d cry that it “wasn’t the right way home”. Back then I knew he had to learn there were many ways to get to somewhere, physically and metaphorically. I would hold him and tell him over and over he was loved and safe and I understood and he was my wonderful brave boy as he cried for hours even after we got home.

This is no different, I’ll be there each step of the way offering him love and support as I help him walk this hard path. I love him enough to do the hard things because he always has been and always will be worth the effort to help him thrive.

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Step 3: Kill it with fire

Every blog posting about buying a used trailer to fix up will tell you that more work is needed than you think.

Naively, I ignored the myriad of warnings 😦 and I ended up finding this:

While I knew from the back that one small section of floor would need to be replaced I had no idea how bad it actually was or the real reason why.

I’d been told the back corner ripped when it was moved as a deck was attached to it and not properly unattached before they moved it, the real truth was much, much worse:

Carpenter ants, hundreds of them living and swarming throughout the entire inside of the walls and floor. The more we removed hoping it was the last “bad” section the more we found 😦 Was it hard on the kids and I to realize we wouldn’t be travelling this summer and that our plan for this trailer was not going to go anything like we’d thought…yep!

But as we took the entire trailer apart, separated each type of material, recycled what we could and brought the rest in multiple loads to the dump, I was able to help them to see that even though we plan, life doesn’t always go according to plan and we have 2 choices: Give up or give it all we’ve got to create a solution.

For this specific case we simply started again but from the ground up lol. Which meant our new first step was cleaning any loose rust from the chassis and then treating it with tremclad.

Now the real building begins! With just over 5 weeks left until I begin University again and the kids start their homeschooling year again the race is on! Do I think the whole thing will be finished in 5 weeks, no I truthfully don’t. BUT we’ll have the floor, walls, and roof done at least and that will give us more time to work on the inside of it on weekends as it gets cooler.

As we build a tiny home now instead of fixing up a trailer we’ll learn lots, work hard, and grow a dream and memories together. Wish us luck! 😀

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So I begin…again

When I was about 9 years old my grandfather wanted to go on a month long adventure touring down to Florida and back in an RV, and he invited my mother and us with him. He and my mom made all sorts of plans and my mom spent weeks researching various places to stay, planned routes and so on. Shortly before it was time for the 4 of us to go, he became too ill. He insisted my mother take my brother and I, and she asked a long-time friend of the family to come with us as my dad couldn’t take a month off of work (but did fly down to Florida where we spent a few wonderful days at Disney Land together).

My grandfather never got to go on his grand adventure, and as a child I missed him on our trip, but didn’t understand the way I do now how hard it must have been for him to dream, plan and then at the last moment not be able to finally experience his dream.

There were so many amazing memories for my brother and I during that month, and to this day I cherish the time we spent. Once I had my own child I decided I wanted to take them across the Americas and “chase the sun” for a year. Where we traveled based on the weather and simply went where it was warm for the year, slowly making our way out west to B.C and then down south as far as we desired only to go east and back up north to our home at the end.

Well dear readers as I last posted I am determined to live a life where I actively pursue my dreams. So while I won’t be heading out just yet as Covid-19 is still causing a pandemic (not to mention lots of researching, planning and most likely repairing to do first) I’m going to take this leap and chase the sun with my husband and children. I have read many different travelers blogs so I know such an experience isn’t always perfect, but nothing that is real is perfect. It won’t be perfect, but it WILL be amazing, because it’ll be my family and I actively living out a dream, together.

For such a large endeavour the first step for me is researching and planning. Hence my brand new research journal:

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NOT leaving on a jet plane

Awhile back I stated I wanted to take a figurative big leap, and I did, well I started too…I bought 5 plane tickets to Portugal, and then plane or bus tickets to 15 more countries for a trip spanning 4 months. I researched different places, museums, historical sites, UNESCO World Heritage sites, different travel sites innumerable “top 10 places/things to do” downloaded walking tour apps, street and local transit maps for each place we’d go to, and booked places for us to stay. I was SO excited!

Then Covid-19 struck the world 😦 As of writing this over 100,000 people have lost their lives to this pandemic…I can’t even begin to express my sorrow for the families of those who have passed from it.

Over the past two months our family has attempted to adjust and get through this time of uncertainty, fear and social distancing. It hasn’t always been easy or pretty. I chose an apartment because I didn’t want to pay more for a house with a big backyard when “the world was our backyard”. Instead we went and did all sorts of things, played at parks, used our local libraries, went on nature walks at conservations, and so on. But for many weeks now all of those options have been closed to all residents of our province (as they are in many countries worldwide).

Slowly the cancellation emails came from the airlines, only 2 flights have received refunds, the rest are credits for future travel. While there have been many messages back and forth for various Airbnb stays 3/4 of the reservations have been refunded to us, and I’m still attempting to receive the rest at least as credits.

So now what? Our grand adventure has been put on hold for an indefinite period of time, and we’re in an apt with no backyard of our own for the kids to run around in.

Well now a new adventure begins, because I can curl up and cry about our cancelled plans (okay I might have already done that a time or 2) or I can do something else. Stay tuned dear readers for my next wild plan!

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Active Participation; his way

Shoulders slightly hunched as he plucks at his pant strings. Sitting on the only chair in the room, he watches the other children dancing. It would be a sad picture of a child excluded, until you look at his face. He’s not forced to sit on the sidelines as it first appears. He’s focused intently on watching their dancing. He’s breaking down the flow and movements of limbs and core into pieces he can then re-create at home. In private he’ll try each move. If he’s stuck he’ll ask his brother for help. Even then, he’ll ask him to do them over and over until he’s sure he’s figured out the “how” to each one…Then he’ll dance. Joyfully, with abandon he’ll dance, for himself, and for all those he loves he’ll ask: “Wanna see my cool dude moves?” But first he’ll watch. I’m thankful our local YMCA accepts him as he is. I’m grateful they respect his ways, and understand his need to watch first. I’m glad they understand that for Mr. N watching IS active participation for him. It’s his way, and they smile at him and tell him he can join in with the actual dancing when he’s ready.

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Reacting verses Responding

It’s easy sometimes to forget how deeply our words impact those around us. It’s easy to forget that what we say and do lives in the hearts and minds of those we love and care for, especially our children. Times when we’re tired and frustrated by a bunch of things that may not even have to do with our child and then they do something, something they’ve done a million times before and we snap. We respond to their actions with our own frustration and upset instead of responding to it in the way our children deserve.

I’m human and I make mistakes, I get mad, and tired, sore and frustrated, and I too can react in a negative fashion. But I try every day to make sure I don’t. I try to respond instead of react.

My “trick” when I’m about to react instead of respond is to look at their hand. Why their hand? Because your closed fist is the approximate size of your heart. I look at their little hand and I see a visual reminder of how tiny their heart is just yet, and I refuse to fill such a small space with pain and words that will haunt them.

Looking at their hand helps me to be reminded that I am here to take their hand in mine and guide them, to show them how to access the great potential that is within each and every single person, their own personal greatness. I take a deep breath as I think of all this and then instead of reacting, I respond.

I respond with love. I try to help them find the most positive way of receiving what they wanted, be it a cookie or a toy someone else is playing with or additional attention. (Any project or chore can wait, but the giving of love and attention should’t be postponed when it’s asked for.)

Why do I say respond instead of react?

The dictionary’s definition of react is to act or do something in reaction to something else. BUT the definition of respond is to provide an answer to a query. In the middle ages respond was a noun for a pillar that actively supported. I feel that especially when they are young, they are looking towards the adults in their life to show them how to act, how to obtain what they want and need, and how to be the best them they can be. They are not purposely trying to “push buttons” or be “bad” they are simply making bad choices because they don’t yet know how to make better choices. It’s up to their adults to answer their unspoken questions and show them how to make better choices.

 

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Some things you just can’t Google

There are times when I get caught up in ensuring that Mr.C is “on-track” or “at grade level” with his peers. I get fixated from time to time on the lists lit up upon my computer screen of all the things our local school board says he should know at this time. Lists of facts and figures, books they have chosen, grammatical rules and scientific theories. But no where in their reams of pages does it speak of morals, attitude, creative thinking, leadership skills, ingenuity or honour.

When I get caught up on what he does or does not know academically, I remind myself of the following:

I am not here to create a robot that can spout facts or scientific theories verbatim, but lacks the ingenuity to put them to productive use when he needs or even wants to do so.

I am not here to force him to memorize plots and dialogues, but lacks the critical thinking skills to grasp the significance of some of the literary works of art we currently have access to as a society in general.

I am not here to ensure he conforms to someone else’s standards, but lacks the honour and strength of character to stand up for what is right when what is wrong is being accepted as the status quo.

What I AM here to do is to teach him to (eventually) be a good man. To be the type of person others will be proud to call their friend, their ally. To be someone with enough courage to stand up for what is right, even when he’s forced to stand alone to do so. To be a man of honour, of integrity, to be a man of  ingenious leadership abilities, even when he’s only leading himself along his own path.

Don’t get me wrong, I DO teach him academics, but if it takes him a bit longer than some piece of paper says to learn about the periodic table of elements or the correct placements of commas I’m okay with that. Why, because he’s learning SO much more right now, he’s learning how to become the man he will be for the rest of his life.

Plus if he forgets the standard conversion rate of ATP to ADP he can Google it, but when it comes to things like strength of character well there are some things you just can’t Google 😉

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#HAWMC Day 7: Why I write about Autism

#HAWMC Day 7: Why I write about Autism. Tell us why you write. How long have you been writing? What impact has it made on your life? Write for 15-20 minutes without stopping.

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I write because if more people understand Autism than there will be less times that parents are ostracised and called out for their supposed flaws as parents. (Such as this)

I want to help show the parents of children that have just been diagnosed the beauty and wonder of parenting that still awaits them! I really am “Happy in Holland” and I don’t wish for different children. Instead I get my butt researching and thinking and planning on how to best help them to have a life they define as happy.  I’m going to repeat that, because I think that right there is a huge issue. I want them to have a life they define as happy. Nowhere do I say I want them to create the life I deem as happy, because it’s not about me, it’s about them. Just as my life isn’t about what my parents deem as a happy life, it’s about what my spirit says is personally fulfilling, and my children deserve the same right to choose their own happiness, as does every other person on this planet!

I write to help other parents see that they don’t need to feel helpless in their childrearing of Autistic kids; they can research and plan and create methods and ways to enrich their children’s lives and help them to access their fullest potential all without demeaning, or shaming them or their natural neuro-pathways. Such as ensuring their cortisol levels are decreased through regular physical activities so they have less overloading and meltdowns. Or making behavioural therapy plans while their waiting for ABA, or creating a sensory room, or finding ways such as massage or the creation of “nests” to make going to sleep easier for them.

I write about my sons’ health, about their “condition” because I want the world to understand the path they walk in this life. I want to share the beauty and wonder they bring to me, and to so many people around them. I want for others to see that yeah they’re different, but it’s beautiful and special and amazing and so incredible. I write about Autism because too many negative stereotypes exist and I can’t change them without shining a light on what Autism really is. What Autism really means and why neurodiversity desperately needs to be accepted by our society.

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Banana Bread and Kesha’s Timber

I was cooking a batch of banana bread french toast (I make a bunch at a time to freeze. Then for breakfasts I can pop a few in the toaster, add a bit of fruit and yogurt and voila perfect for mornings I’m tired but want the kids to eat well without much cooking on my part) As I was making the last pan of them Kesha’s Timber came on the radio. There’s part that says “swing your partner round and round” and I couldn’t resist, so I grabbed Mr. C and we started to dosado round the living room. As our laughter rang through the house, Miss. G quickly rushed towards us, arms outstretched wanting to join, wanting to be a part of the laughter and love and fun being had. Of course we smiled and took her little hands in ours and started to simply dance in odd disjointed circles about the living room. Mr. N excitedly asked if he could join in as well, and so our circle got larger again, and we all laughed as we danced gleefully about the living room, our hands as intertwined as our hearts and our energies.

The last pan full of banana bread french toast were darker than I normally cook them as I’d left them on in my haste to enjoy the moment with the wee ones. I think if anything they’ll taste even better than usual for all the love that filled the house as they were left unattended on the stove, and if they don’t well that’s what maple syrup is for 😉

 

P.S Banana bread french toast is just using an epic banana bread recipe like this one and substituting slices of it for plain bread to make french toast, an easy twist to a family favorite.

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And so a hero is born…

At the YMCA today Mr. C went to his homeschool group while Mr. N and Miss. G played in the gym. After it was over I stayed in the gym with them while my mom went to the program area to get Mr. C. He came into the gym and both siblings rushed to hug him as if he’d been gone for years instead of the hour it had been. Miss. G was trying her best to throw the basketball into the net. It didn’t really work, in fact it didn’t work even a little for her, she’d hold the ball above her head and try with all her might to throw it high, but it’d only go an inch or two above her head and then come bouncing down. Mr. C watched her and cheered her attempts on for a couple of minutes, but then he walked towards her and scooped her up. I watched Miss. G’s face light up with glee as Mr. C carried her on top of his shoulders towards the net so she could try and get the ball in the basketball net. Written upon her face was the sure and deep truth that he was her hero as clearly as if she’d said the words aloud, and my heart sang from being blessed to see this moment between them.

We hadn’t gone to Monday’s homeschool group in awhile, see it ends at 2:30 p.m, which is exactly when Joy would be picked up from the Y’s daycare. While my heart lurched and tears sprung to my eyes as the hands showed it was indeed that time, I’m glad I went. I would have missed out on the giggles as Miss. G raced across the gym to get the ball over and over, I would have missed out on Mr. N’s proud exclamations of “look at me, look what I doing!” as he tried to balance on his stomach on a basketball. I would have missed watching Mr. C and Miss. G bonding, and I would have missed the moment he stopped being just her brother and became her hero too.

 

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