Behind starburst eyes

We’re not in Kansas anymore…

“Of all the things that are different its the bees that make me homesick, they look like regular bees but they are blue and purple. Every time I catch a glimpse I think it is a real bee but then I am reminded that it is not home.”

The above passage from a book struck me deeply.

It made me think of many conversations I have had over the years with many persons and the struggles of trying so hard to “be a part of this world” when you feel like you really don’t belong. And isn’t that one of our most basic needs as human beings, the feeling of belonging? The feeling of being accepted? The feeling that yes, we too are a part of something larger than just ourselves. Some people find that feeling within their families. Some find it with a couple of close friends. Some find it at a place of worship.

But what about those that don’t find it? What about those that struggle each and every day to just BE a part of a group that loves and accepts them unconditionally?

98% of our DNA is the same as every single person’s on the planet, surely 2% out of 100% shouldn’t be enough reason for someone to feel different and excluded from the rest of the world…
How can we as their fellow human beings help? I don’t know. I don’t have the answer, but I’m hoping someone somewhere reading this just might. SO PLEASE, add your ideas at the bottom. Perhaps with many minds we can find a way to ensure ALL people feel the love and acceptance they deserve as fellow human beings.

Leave a comment »

#HAWMC Day 7: Why I write about Autism

#HAWMC Day 7: Why I write about Autism. Tell us why you write. How long have you been writing? What impact has it made on your life? Write for 15-20 minutes without stopping.

images

I write because if more people understand Autism than there will be less times that parents are ostracised and called out for their supposed flaws as parents. (Such as this)

I want to help show the parents of children that have just been diagnosed the beauty and wonder of parenting that still awaits them! I really am “Happy in Holland” and I don’t wish for different children. Instead I get my butt researching and thinking and planning on how to best help them to have a life they define as happy.  I’m going to repeat that, because I think that right there is a huge issue. I want them to have a life they define as happy. Nowhere do I say I want them to create the life I deem as happy, because it’s not about me, it’s about them. Just as my life isn’t about what my parents deem as a happy life, it’s about what my spirit says is personally fulfilling, and my children deserve the same right to choose their own happiness, as does every other person on this planet!

I write to help other parents see that they don’t need to feel helpless in their childrearing of Autistic kids; they can research and plan and create methods and ways to enrich their children’s lives and help them to access their fullest potential all without demeaning, or shaming them or their natural neuro-pathways. Such as ensuring their cortisol levels are decreased through regular physical activities so they have less overloading and meltdowns. Or making behavioural therapy plans while their waiting for ABA, or creating a sensory room, or finding ways such as massage or the creation of “nests” to make going to sleep easier for them.

I write about my sons’ health, about their “condition” because I want the world to understand the path they walk in this life. I want to share the beauty and wonder they bring to me, and to so many people around them. I want for others to see that yeah they’re different, but it’s beautiful and special and amazing and so incredible. I write about Autism because too many negative stereotypes exist and I can’t change them without shining a light on what Autism really is. What Autism really means and why neurodiversity desperately needs to be accepted by our society.

Leave a comment »

Dear Parent of an Autistic Child

I was recently asked what advice would I tell a parent of child recently diagnosed with Autism, while each person is unique and each set of circumstances are different this is what I would have liked to have known when my eldest was first diagnosed:

Dear Parent of an Autistic Child,

You have just been told that your child is autistic, and I’m sure you have a great deal of questions swirling around in your mind. Some might be questions such as: What exactly does this mean for your child? How will you tell others? Will your child be accepted by their peers? How can you best help your child to thrive and grow? What types of treatments should you utilize for your child? And so on, and so on…

I don’t have all of the answers, in fact no one does, not even the specialists and doctors have them. The only person with the best chance of having most of the answers is you. I know you probably don’t feel that way right now, but it’s the truth. No one will know your child better than you, no one will love your child the way that you do, and no one will be as devoted to their wellbeing and happiness as you are.

Research all you can about Autism, learn everything you can about what it really is. The more you understand about Autism the more you can make informed decisions about what is truly best for your child. If a type of treatment or medication or anything gives you a bad feeling, respect your intuition as your child’s parent! Just because _____ worked for so and so doesn’t mean it’s right for your child, and that’s okay. Remember that each person is unique, there is no one single way to parent!

There will be days that are beyond hard, they will stretch you to your mental and emotional limits and beyond until you feel like just breathing is a struggle. The catch to that is that it isn’t because your child has Autism that times will be difficult, it’s because you’re a parent in general now. Each parent will face challenges they aren’t sure how to overcome, each parent will struggle to know and do what is best for their child, that’s just a part of parenting. There will also be moments of such great joy that you will wonder if your heart is going to burst from them.

Above all remember that your child is just that; your child. They are still the same child that you held and cuddled and loved before their diagnosis. They are still capable of a full life filled with happiness if they are just given the right tools and opportunities. At it’s core, that is what parenting is about; loving your child unconditionally and giving your child the specific tools and opportunities they specifically need to create the life they find personally fulfilling.

Sincerely,

A Mother of 2 Autistic Sons

5 Comments »

Blurry Pictures and Clear Signs

CAM01152  I read another’s blog post today. It can be found here. What I got from it was that it was about his fears for his Autistic daughter’s future after watching two girls from the same grade not even notice her during a morning walk. As well as his hopes for his daughter’s future after attending a dinner filled with Autistic young adults.

It struck a cord with me because there are moments when I worry for my boys. I worry sometimes as I watch other children surpass them socially, I worry as I see news reports of an 11 year old Autistic girl who didn’t respond being tasered by police when found walking nude along a free-way. (Full story found here) I worry when I think of the only time Mr. C was in school (preschool) and his teacher told him he wasn’t good, that he was lacking and so many other things that tore at his fragile self-esteem which lead me to taking him out of there and choosing homeschooling instead because I didn’t want to risk him having more teachers like that. I worry when I start to think of the world as it is right now in regards to acceptance and the lip service that is often given, but real efforts not.

I was still thinking of it when I was getting Mr. N out of the bath (juice, play-doh, and stickers make one huge mess lol) as I closed the bathroom door behind us, for the first time he noticed something I’d forgotten was there; a blue index card I’d written that says “You are perfect exactly as you are” Originally I’d written it and put it on the outside of the bathroom door for the 3 children quickly getting older and noticing the media’s messages about superficial images. But he pointed at it and asked what it said. I read it to him and he smiled and said “Awe” and I asked him who it was about, he told me me it was about him, that it was his… He was right. He IS perfect exactly as he is, all of my children are, and instead of being worried about their future I’m more determined than  ever to ensure I help to change the world’s perception of Autism so that people will be more open to truly seeing them. To talk and write and do whatever it takes to help create the world I want for them, one where they and others are valued as they are, one where diversity is embraced, one where others see the value they can bring to a friendship and try to cultivate them, one that sees my boys and all people as perfect exactly as they are.

 

3 Comments »

Fantasy Hair Colors

I understood that upon becoming a mother that I would most likely do things I’d never imagined prior to motherhood for the sake of my children, having pink hair wasn’t one I expected. I am now used to the looks I receive upon first seeing me with my variety of bright hair colors, ones that are commonly called “fantasy colors” because there is no way that they could ever be natural. My favorite is bright pink, almost a fuchsia really. For years I dyed my hair various shades of Auburn and I loved it the vibrancy of them. (Naturally I’m simply a dark chestnut brown)

When my eldest son was about 3 years old I started taking him to our local library’s pre-school story time program. It was once a week for 45minutes and he loved it. The part he did not love was “pick-up time”, which was when the grown-ups who were to wander the library during it but to stay away from the actual area the kids were in came back to the children’s area for their child. He didn’t like that time because he had trouble with facial recognition skills and would get anxious trying to “find” me in the throng of moms standing in a row waiting for our kids. I tried to figure out what to do to help him as he couldn’t just quickly scan the area with his eyes and spot me. It would take him time, enough time that he’d get upset thinking that I wasn’t there. I tried pointing out what I was wearing before we’d go in so he could look for a certain color of shirt or whatnot, but that did not work. I tried making sure I was at the beginning of the line, but then he’d start looking at the end first those days and vice versa, I tried calling for him from the moment he started looking, but still he wasn’t sure where my voice was coming from as he’d already be nervous…And that is how my fantasy hair colors started. I dyed my hair a brilliant fuchsia and of course I was the only adult with such hair color at our little library and so it was very easy for him to glance for the hair color and then take the few seconds he needed to verify my face in his mind. The nervousness on his part stopped, and overall it was much happier and better for him as he could be excited about the library program (which he LOVED) and still feel safe and secure that he could find me when he wanted too.

His facial recognition has gotten much better over the years, to the point that I don’t need to dye my hair anymore for his sake. My younger son also associates the fantasy hair colors with me though, to the point that he automatically assumes when seeing them on someone else that they are me, and will try to follow them if I’m not with him calling out “momma”. Once he’s able to recognize my face immediately, and does not need the visual cue of a unique hair color will I stop dying my hair? No, probably not. I started doing it to help my eldest, and eventually my youngest as well, but over the years ironically enough I too have started to associate those hair colors with me.

Leave a comment »

Summer Solstice Strawberries & Our Virtues

Every year we pick strawberries on the first day of summer. We make various jams from them, and put some in bags in the freezer for delicious smoothies. We also talk while we’re on our way there, and during it about a few things. We talk about how it’s the first day of summer, which means it’s the longest day of the year. We talk about all that Mother Earth has grown since the first day of Spring. As well as all that we have grown in our lives. We discuss that which is ready for harvesting in our own lives as well as what we need to further nurture and grow more before it’s “ripened” in our lives. We talk about the unintentional “plants” we’ve sowed (such as being argumentative, or jumping to assumptions, or whatever it is that each of us has been “growing” in our lives.) The good and the not so positive all get reflected upon. Then we decide what we shall continue to nurture and what we shall “pull” or “weed out” of our lives and ourselves. I started doing this with the kids as well as myself when C was very young, because I feel that regular introspection and honest reflection about ourselves is one of the ways we can help ensure we are growing in the ways we want to be. Conversely, it means that the things we don’t want to be “growing” within ourselves can be “pulled out” faster, when it’s had less chance to grow unchecked. It’s easy to say we’re going to do _____ and ____. It’s a bit more challenging to really look at oneself and see where we’ve perhaps gone off the path we’d prefer to be on and admit ownership of our “flaws” or less than virtuous aspects. But with regular honest, open reflection on who we truly are at that point in time and how it fits with who we aim to be we can foster the traits we most admire like honesty, patience, selflessness, honor, etc with better results than if we leave ourselves “unchecked”.

Leave a comment »

Dust bunnies versus sticky fingers

“Sometimes I can hear my bones straining under the weight of all the lives I’m not living.” by Jonathan Safran Foer

The above quote was found unexpectedly while I was looking at a sweet story about a dad that was going the extra mile to ensure his son had a wonderful Halloween. There right beside the heartwarming story was that quote, separate from the story.

I read it, and I felt like I had been punched in my solar plexus, it resonated SO deeply within me. I am often bothered by all that I haven’t accomplished, by all that I have not yet done. I try every day, but there’s never enough time, and there’s always something that needs doing that I hadn’t expected. I’m in my 30’s and I feel like all of those 3 decades have passed in a blur. Each year fluttering past in wisps of color and opportunity too fleeting to catch or hold on to. I try to make every day count, but I find that the mundane things often get in the way, like cleaning. It does not seem to matter what I try it always takes me ages to get the house cleaned every single day. No matter how spotless it is one day the next it’s a mess again and again I’m forced to choose between cleaning or adventure. I know I have to be the responsible adult and clean, but I want to just experience each short moment I have with my kids, I want to play with abandon with them, and laugh with joy at their discoveries, I want to go on “treasure hunts” and nature walks, and trips to the library and read under a tree from books about anything and everything to them. I want to be able to be present in the moment with them and not always “in a minute” “after I’m done the dishes we’ll ______” etc. A great deal of the time I do say “piss on it” to the housework and the time that gives me to just experience little hands fluttering across my triceps as I walk for 2 hours with N in the hiker as I walk to get him a donut and back home is priceless. Just sitting here, I can still feel the warm sun on my face, his icing covered fingers lightly touching my triceps as he yells his excitement at an orange jeep that drives past us. I treasure those moments more than I can say, they ARE what make me “me” each of those memories.

So among other things that I have to do cleaning is for sure one of the most time-consuming, so any tips dear readers? Please keep in mind I have a house with 3 adults (my mother is NOT able to help due to her health, and I’m just happy to have her company) 3-5 children, 2 of which are on the spectrum, of those two one that needs constant attention and assistance, and the other one is homeschooled by me and therefore needs time every day for that. As well as one that is not yet walking, but does love crawling everywhere she can.

2 Comments »

Favorite Children’s Books for Children with ASD

help me be good seriesI LOVE author Joy Berry’s series “Help me be good”. It’s a fairly large series, there are 29 books in all. It originally was published in 1988 and I read every single one of them as a child myself. Fast forward an undisclosed amount of years to when my eldest son was 3 years old and we were at our local library. Every time we’d go I’d check out the books they had for sale as each was only $0.25. One cold morning I spied the entire collection all in pristine condition on their sale shelf. Excited doesn’t even begin to describe my reaction. I scooped up every single one of them! Why do I love this series so much? Because each book deals with a common behavior, discusses how others feel when a child is choosing that behavior, what a child choosing those behaviors might be feeling, and other positive ways of dealing with those emotions, or situations, all in easy to read, direct language that doesn’t use metaphors or confusing sub-text that a child on the spectrum might not pick up on. From the day we brought them home I read one every day to my son for the better part of a 2 years. Each day he would pick a book for me to read and I would pick one of Joy Berry’s books to read to him. He loved them. They helped him to understand social concepts easily and without feeling bad at not getting them without the books as it was never “about him” it was always about “another child” one from her books.

Interupting Joy Berry BookThe book about Interrupting says “You are interrupting when you talk when other people are talking… Try not to interrupt people who are talking to you. Allow them to finish talking before you speak. Say “excuse me” if you must interrupt them. When someone interrupts you, you might feel angry or frustrated. You might think that person is not fun to be with.”

At the end of each book it always says “It is important to treat people the way you want to be treated”

See, easy, clear explanations of what the behavior is, how people feel, and how to avoid doing it with simple blunt instructions on what is socially acceptable and what is not. I’ve already started to read them to my younger son, and while he’s not super keen on them yet (he won’t be 3 until Oct) with him already being diagnosed with ASD I think it just makes sense to start early.

After all a large part (not all but a big part) of ASD is a deficiency in social development and understanding. If my child had massive issues with math I’d do my best to focus on helping them improve their math skills to the best of THEIR abilities. No I wouldn’t expect them to get a PhD in mathematics but I’d help them to learn as much as they could to help them thrive to the best of their abilities. Teaching social skills from an early age in a more intensive or focused manner just makes sense to me for my boys with ASD. Their brains are hardwired differently, but different doesn’t mean they can’t learn, it just means they might need different ways of being taught and more time to learn the same things as a child without ASD.

For those that are interested, if your local library doesn’t have this fantastic series it is available on places like Amazon.com or Chapters.ca
Chapters also has her other series: “Let’s talk about” and “A fun and easy way” both of which I’ll be getting for the eldest to read and eventually reading with the youngest. 😀

If you’ve read her books, let me know what you thought. Were they a helpful book series for children with ASD? Or even helpful for children in general? (I personally read many of them with the kids I looked after in my daycare years ago that weren’t on the spectrum because I thought they were great for all children in general but especially ones that have social skill deficiencies.)

4 Comments »

The mystery of crayons

Another box of crayons has been unwrapped. N still loves very much to unwrap each one. His slow methodical precision is fascinating to watch. No piece of paper is left, no matter how small. I wish he could type or sign or say what he appears to be looking for when he unwraps each crayon. It’s certainly not an absent-minded action on his part, for each movement of his little fingers is deliberate and sure. His eyes never look anywhere but at the crayon as he unveils it in its entirety. Is he making sure that each part of it is the exact same shade? Does he think something else might be hidden underneath the paper? Or does the feel of the paper it’s wrapped in scratch his hand when he tries to color with it? Is he removing an additional sensory stimulation he does not find appealing? One day when he can answer me, I’ll ask him and listen with bated breath as I’m given more than just a glimpse into the thoughts and inner workings of his precious mind. Until then I will marvel at his concentration, and at the deliberate movements of tiny fingers busy at work. I will marvel at how his eyelashes flutter as he stares so intently upon the unveiled crayon and carefully places it with the others, only to pick up another paper covered one and start again. He won’t be done the task he’s set himself upon until the box is finished, and I won’t ever be done watching him in awe as I get glimpses into his breath-taking mind.

Leave a comment »

Organizing Foods

MH900430659 N gets very excited by how foods are presented in bakeries, delicatessens, and the like.   He’s happy to try many different foods from these places, but when presented with these same foods at home he is unwilling to eat them. I was speaking with a friend who asked me an absolutely brilliant question about it. She asked me if I thought it was because of how visual he is and how neat and organized the foods are in those types of places that he preferred them. She asked me if I’d put his food into lines on his plate before and if so what did he do. To be honest I hadn’t done it before. I’ve made pictures with his food (happy faces or cutting roasted potatoes in the shape of cars) but I hadn’t actually taken his foods and made lines on his plate with them. With how much he loves organization, and lines in general I am actually quite hopeful that this just might work to help him eat better/more. Considering he’s currently on supplementations of various vitamins as well as a meal replacement drink due to his lack of current food intake I’m totally excited at trying something that just might make a positive difference in the amount of healthy foods I am able to get him to eat and enjoy! Wish me luck dear readers, this momma’s about to get the mandolin out to make some super organized veggie and fruit lines 😀

2 Comments »

%d bloggers like this: